A recent question in a social media group reignites ponderings and some suggestions in hope to put both sides at ease. Follow the facebook link and look for “Seeking the Warm Fuzzies Part Two” in a couple of days. Naturally, food is involved.
As a foodie with food allergies I feel that any packaged product is potential death waiting to happen. That might be a bit dramatic. Seriously, my step son with bakers dozen food allergies and I of a few call certain products boxes of death. Largely, because it is. Shockingly it gets worse, food allergies are NOT just in the food aisle. They lurk every where. As a matter of frightening fact, companies can pretty much put any claim or statement on their product with little to no accountability. There is one major Federal law to “protect” us foodies with food allergies. Thank you foodallergy.org for informing us that only eight allergies have warning labels on a certain number of food products. If you clean with it, take a prescription, take an OTC, put it on your skin, has a kosher label, or smoke it (ew) then a company is not obligated to tell you when an allergen may be in their product.
Lesson one is read labels on household products but they are not required to have a warning label. We learned this the hard way with lotion containing almonds and hand wash with casein (milk protein). It was right on the ingredient label and we just didn’t think. Have you read their labels? I decided not to become a chemist for a reason. Read labels and learn the chemical names. Especially when it comes to cosmetics. Speaking of, lip balm and lip glosses may contain fish oils. Watch for that.
It isn’t always on a label either. After taking on the GF life, I was still reacting as though I was still eating gluten. As wise sage informed me that it may be my laundry detergent. She was right. Water and flour are suspected added as fillers. We switched to a concentrated, natural product and the reactions stopped. Along with the laundry switch and a reading/investigation about peanut oils in products, cleaning products were changed too. I like my house clean but don’t want to put my sons life at risk. Lesson two here is: if you have an allergy and have removed it from your diet, chances are its in a household or self care product. “Get rid of it” instructions below.
Other scary food allergy things
– Play dough contains wheat
– Marzipan is made from almond paste
– Worcestershire sauce contains fish
– Soy sauce is blatantly out there with having soy
– Read supplements and vitamin labels. Example, many joint supplements contain shellfish
– Ask before you vaccinate- some contain eggs
You have the PSA. Food allergies are everywhere. Practice food allergy safety- know chemical names, read labels, and listen to your body. If you are reacting as though you have a food allergy and you haven’t eaten it, it may be skin deep. Or more. Take away whatever you suspect for two weeks (takes that long to get out of your system) then keep it away if you get better or you can “challenge” by adding it back to see if the reaction happens again. If the reaction is severe or life threatening, don’t play chicken and stay out of challenges. If you aren’t sure if you are reacting or why or the reactions are severe, see an allergist.
Namaste and Share for the Good of other Allergy Foodies
This is where is our story didn’t begin. This is where I realized that after years of teaching with special needs, years of advocacy with other families, and years advocating for myself and daughter it was time to be vocal. This is part of our story and there is more to come. My hope is that you will share your story too.
*orginally posted January 10, 2017
It’s been so cozy in our glittery wonderland of bubbles and glitzy paper; however, the holiday tilt a whirl has abruptly told us to get the hell off. The ton of brick of sorrow and fury hit full force today. It’s not a new or sudden burden, but a reality being acknowledged and denied all the same. For years, I’ve been told “she’s okay,” “there’s nothing wrong,” “we don’t see anything.” My daughter is the ghost child. You see the specter but right through her because you don’t see.
While my daughter is “okay” she’s not “okay.” This morning’s event has continued months of agonizing, acceptance, determination, reflection, and writing. In reflection, I keep going back to her preschool years when I literally thought I was going to lose my mind. Literally everyone indicated that there wasn’t anything wrong. It kept nagging as we stumbled through doctor visits, late nights, and uncertainty. Confirmation was something as a parent I needed and few offered their compassion. Most dismissed us. As it turns out she did and does have hearing loss. When those tubes fall out for the third time, we will be vigilant and awaiting our battle. I’m tired of being dismissed. I’m not the only parent who has experience this or feels this way. I hear you. Your anguish. Your need to be heard. Your unique dynamics in need of being understood.
In truth, to those who dismissed our cry, I’m angry with you for being so ignorant and uncompassionate. I’m livid at myself for my lack of self value to better advocate for her. Those bricks hurt like hell as I watched my daughter shut down in testing today, near tears, just so we confirm what we already know. It seems like torture for her to go through this. She has been coping but those threads are unraveling. We shouldn’t need confirmation; we need solution. We see all of her. Her uniqueness, talents, struggles, temperament, and yes, her disability. We won’t let our ghost child come undone just so you can “see it.”
It hurts to watch her struggle and dread basic tasks. It hurts to lose our cool when we don’t understand why she can’t be like our other kids. The guilt on days that we can barely handle it. It hurts to know something isn’t right and feel like we need to be committed to a psych ward because no one else sees it. While we are still in the phases of testing and evaluations, the instinct is stronger than ever. Our creative and insightful ghost needs more to be better understood. She needs more of me and she needs more of you.
Stop dismissing the ghost children.